August 10, 2017 9:15 pm

Josh seemed to be getting worse today. He wasn't talking, he couldn't read, he didn't know his name, he couldn't write his name (even after we told him what it is), and he couldn't feed himself. So after a stressful day of waiting, the neuro PA finally dialed Josh's shunt from 6 to 5, meaning that more fluid is draining out of his brain into his abdomen. But if the fluid drains too quickly, that can cause "brain collapse," which results in (more) permanent brain damage. It's pretty stressful with the bone flap on because now we can't see if his brain is swelling of shrinking.

Because of the surgery, Josh's face is really swollen.  In the picture below, both his eyes are open.

We were moved from the Neuro ICU to the Neuro Floor, where we'll be until we return to Craig on Monday. Our room is huge! Crappy view, though. As soon as we got to our new room, Mary gave Josh a shoulder-down shower - first one in more than a week! Josh can't regulate his body temperature, so he always gets freezing cold even in a warm shower. (This shower was 106 degrees. They have really cool digital water temperature gauges. We need those in our place because of our drastic water fluctuation problem.)