September 17, 2107 10:00 pm
[Mary and Paul want to thank Eden for flying all the way to Denver to watch Josh for a couple of days so we could continue our quest to visit all 50 states together. Four more down (NE, KS, OK, & NM)! And thanks to RJ for handling things at home so Eden could make it.]
Happy Sabbath to you all! This is Eden again. Today was a very slow day at the hospital, which is pretty typical for the weekend. Josh got dressed and brushed his teeth. Instead of me going to get his breakfast, he wanted to go to the cafeteria himself. So we headed on down there around 8:30 AM. Since it was just me and Josh on our own, I let Josh order his own meal, mostly out of curiosity to see if he could do it on his own. He wanted peaches, and asked for eggs, 2 pieces of bacon and hash browns. He even told the cashier his room number. I was super impressed he remembered. Then, he led me over to the ketchup and we went back to his room to eat. In the hour he had his tray, he barely touched his meal. He had had enough and walked his tray to the return spot and promptly went back to bed. He spent the next several hours just watching TV. He said he was feeling a bit weird, so I just let him relax.
I brought some lunch to him around noon, which he quickly ate most of. He must have been super hungry from not eating his breakfast. After which, his nurse came in to remove the bandages from his recent surgery. Interestingly enough, the doctor stapled the bandages to his head. So removing them was not comfortable. A couple of the staples were really quite painful. The nurse kept stopping and taking breaks because it was too painful to continue. After applying some much needed Lidocaine on the remaining staples, she was able to remove the remaining 2 without so much resistance from Josh. It still hurt, but it was much more manageable. After the staples were removed, he was pretty tuckered out. He said he just wanted to go to sleep and about 10 minutes later, he was out!
About 20 minutes later, Mom and Dad came home from their trip and relaxed for about an hour before we headed back over to Josh's room. When we arrived, he was already awake. Dad got him up and Mom nudged him out of the room despite him wanting to just stay in bed. We walked around for a bit before finding some bean bags and Josh showed me a bit of what he does in OT. My parents mentioned him playing a bean bag game a couple of days ago, and Josh taught me how.
Since we were playing in the hallway, Dad guided us to the gym where the bean bag game morphed into throwing the bean bags onto the yellow tape on the floor from about a 6 foot distance. We switched on and off who got to play with Josh and whichever team got the most bean bags on the tape, won! Mom and Josh dominated with a perfect 8/8 bean bags. Hard to beat perfect!
After bean bags, we played some Domino's. We were all pleasantly surprised at how well Josh remembered the game and what to do. He matched the tiles pretty well and he needed little assistance. The last game, he lined up all of his dominoes and had none left over. It was great to see him playing games just like old times.
As you all probably remember, Josh had his off-campus pass taken away a little while back. But since I was in town, and it was a special occasion, Dad got up the courage to ask his nurse (who is pretty conservative) if we could take him off campus to dinner. To our delight and surprise, she agreed! We think they never changed the paperwork to show the pass was taken away, but nevertheless, we were happy with the news and quickly left before she could change her mind.
We enjoyed a quick and delicious meal at Denny's. It was a pretty quick restaurant that wasn't too far from the hospital.
It was the perfect first allowed outing for Josh and quickly wore him out. By the time we were on our way home, he was ready. He went straight back to bed for the night. He was in and out of sleep until he got his nightly bath and medicine. We took off and let him fall asleep to some TV tonight while his tech keeps her eye on him tonight.
Besides being allowed to go off campus with Josh, the other good news is that he gained another 2 pounds this week. I think this is the one situation in which we are all happy to see the scale go up.
[Mary and Paul want to thank Eden for flying all the way to Denver to watch Josh for a couple of days so we could continue our quest to visit all 50 states together. Four more down (NE, KS, OK, & NM)! And thanks to RJ for handling things at home so Eden could make it.]
Happy Sabbath to you all! This is Eden again. Today was a very slow day at the hospital, which is pretty typical for the weekend. Josh got dressed and brushed his teeth. Instead of me going to get his breakfast, he wanted to go to the cafeteria himself. So we headed on down there around 8:30 AM. Since it was just me and Josh on our own, I let Josh order his own meal, mostly out of curiosity to see if he could do it on his own. He wanted peaches, and asked for eggs, 2 pieces of bacon and hash browns. He even told the cashier his room number. I was super impressed he remembered. Then, he led me over to the ketchup and we went back to his room to eat. In the hour he had his tray, he barely touched his meal. He had had enough and walked his tray to the return spot and promptly went back to bed. He spent the next several hours just watching TV. He said he was feeling a bit weird, so I just let him relax.
I brought some lunch to him around noon, which he quickly ate most of. He must have been super hungry from not eating his breakfast. After which, his nurse came in to remove the bandages from his recent surgery. Interestingly enough, the doctor stapled the bandages to his head. So removing them was not comfortable. A couple of the staples were really quite painful. The nurse kept stopping and taking breaks because it was too painful to continue. After applying some much needed Lidocaine on the remaining staples, she was able to remove the remaining 2 without so much resistance from Josh. It still hurt, but it was much more manageable. After the staples were removed, he was pretty tuckered out. He said he just wanted to go to sleep and about 10 minutes later, he was out!
About 20 minutes later, Mom and Dad came home from their trip and relaxed for about an hour before we headed back over to Josh's room. When we arrived, he was already awake. Dad got him up and Mom nudged him out of the room despite him wanting to just stay in bed. We walked around for a bit before finding some bean bags and Josh showed me a bit of what he does in OT. My parents mentioned him playing a bean bag game a couple of days ago, and Josh taught me how.
Since we were playing in the hallway, Dad guided us to the gym where the bean bag game morphed into throwing the bean bags onto the yellow tape on the floor from about a 6 foot distance. We switched on and off who got to play with Josh and whichever team got the most bean bags on the tape, won! Mom and Josh dominated with a perfect 8/8 bean bags. Hard to beat perfect!
After bean bags, we played some Domino's. We were all pleasantly surprised at how well Josh remembered the game and what to do. He matched the tiles pretty well and he needed little assistance. The last game, he lined up all of his dominoes and had none left over. It was great to see him playing games just like old times.
As you all probably remember, Josh had his off-campus pass taken away a little while back. But since I was in town, and it was a special occasion, Dad got up the courage to ask his nurse (who is pretty conservative) if we could take him off campus to dinner. To our delight and surprise, she agreed! We think they never changed the paperwork to show the pass was taken away, but nevertheless, we were happy with the news and quickly left before she could change her mind.
We enjoyed a quick and delicious meal at Denny's. It was a pretty quick restaurant that wasn't too far from the hospital.
It was the perfect first allowed outing for Josh and quickly wore him out. By the time we were on our way home, he was ready. He went straight back to bed for the night. He was in and out of sleep until he got his nightly bath and medicine. We took off and let him fall asleep to some TV tonight while his tech keeps her eye on him tonight.
Besides being allowed to go off campus with Josh, the other good news is that he gained another 2 pounds this week. I think this is the one situation in which we are all happy to see the scale go up.
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