September 22, 2017 9:45 pm
We would have arrived in Cape Town, South Africa by now. Just saying ...
Since today was our discharge date and we're still here, we were given a new discharge date of Oct 6. We really aren't sure that this date means any more than the others we've had, but our insurance benefits are ending soon, so either the hospital will need to convince our insurance company to keep paying (and the insurance company has already said no to that), Craig will have to pay for our stay, or we will leave. We have mixed feelings about what to hope for.
Sitting in the speech pathologist's office this morning, Josh looked at a drawing and reviewed things that can be found in a kitchen. After he tried to name them all, we went to an actual kitchen in the gym and he tried to identify the things there (sink, cabinet, dishes, coffee pot, microwave, refrigerator, stove, oven, etc.). It was really hard for him and took the entire hour.
Sunday night a rash showed up on Joshua's chest. The doctor has no idea what it is, and it hasn't gone away, so instead of having Josh attend his next two classes, the doctor sent us to an outside dermatologist.
The most interesting thing about this picture isn't the doctor's boxers. If you look closely, you can see Josh's PEG tube still in his stomach.
Because Josh missed his classes, the therapists tried to fit him into their schedules later in the afternoon - which was really nice of them. PT walked around with him. There is rarely anything exciting to report with PT. OT is a lot more fun. First Josh put together a puzzle by himself. He did a good job!
Then he did various thinking/coordination exercises with a very bouncy rubber ball. In the following video he is trying to bounce a ball in time with a metronome.
Josh was surprisingly restless tonight. He wanted to walk around the building and walk around outside; he definitely didn't want to go to sleep. So his night medications (which are usually given around 8:15) weren't administered until 9:30.
We would have arrived in Cape Town, South Africa by now. Just saying ...
Since today was our discharge date and we're still here, we were given a new discharge date of Oct 6. We really aren't sure that this date means any more than the others we've had, but our insurance benefits are ending soon, so either the hospital will need to convince our insurance company to keep paying (and the insurance company has already said no to that), Craig will have to pay for our stay, or we will leave. We have mixed feelings about what to hope for.
Sitting in the speech pathologist's office this morning, Josh looked at a drawing and reviewed things that can be found in a kitchen. After he tried to name them all, we went to an actual kitchen in the gym and he tried to identify the things there (sink, cabinet, dishes, coffee pot, microwave, refrigerator, stove, oven, etc.). It was really hard for him and took the entire hour.
Sunday night a rash showed up on Joshua's chest. The doctor has no idea what it is, and it hasn't gone away, so instead of having Josh attend his next two classes, the doctor sent us to an outside dermatologist.
The most interesting thing about this picture isn't the doctor's boxers. If you look closely, you can see Josh's PEG tube still in his stomach.
Because Josh missed his classes, the therapists tried to fit him into their schedules later in the afternoon - which was really nice of them. PT walked around with him. There is rarely anything exciting to report with PT. OT is a lot more fun. First Josh put together a puzzle by himself. He did a good job!
Then he did various thinking/coordination exercises with a very bouncy rubber ball. In the following video he is trying to bounce a ball in time with a metronome.
Josh was surprisingly restless tonight. He wanted to walk around the building and walk around outside; he definitely didn't want to go to sleep. So his night medications (which are usually given around 8:15) weren't administered until 9:30.
You might want to make a list of the things they do to support his memory and continue the exercises after he reaches home.
ReplyDeleteHe is looking great! It amazes me how he is continuing to progress -- slowly, yes, but PROGRESS!!! I'm so glad he has you both there. I feel confident it makes a huge difference!
ReplyDelete