September 8, 2017 9:00 pm
Mary was in the ER again early this morning. Besides the burning in the throat and ears, the coughing, and NO voice, she was having trouble breathing. She got the full workup this time: IV, EKG, lung x-ray, ambulizer, blood panel, the whole 9 yards. But the final diagnosis was the same as Monday morning: a virus. "Likely a small virus that won't go away because of stress." (What stress?) We wish it were strep. Z-pack and done. The doctor said it should be gone in 2 weeks. Two MORE weeks??!! Mary did take some time away from the hospital again today -- on two occasions -- to try to relax and get some rest.
Josh's first class was at 9:00 this morning. Josh's double vision began just yesterday and it seems to have progressed quickly, which we hope is good. It bothered him today. So in OT they worked on strengthening his right eye, and they taped over the lens on his glasses so he can't see through that eye. The therapist called it "optic neuropathy," which if accurate is hopeful because that means that the nerve has a chance of regrowth.
Josh's next class was PT. If the vision in his right eye returns, he will regain depth perception so Josh won't have so many restrictions on walking - specifically, no more wheelchair. So, in hopes of that happening fairly soon, they focused on balance today in PT.
After lunch, Josh had ST but we don't know what happened in there because he did it alone with the therapist. He also spent a few minutes with Dr. Schraa, his psychologist.
Josh did give us a scare today. We were with him in the special T-Rec center, where we play Foosball, air hockey, pool, and games on the Kinect. We turned our eyes for a minute and, poof, he was gone. He just took off on his own and we didn't see where he went. Well, we immediately began a hurried search of the entire campus, running all around and even looking up and down streets. We alerted the staff and they helped. Finally one of the other families reported that they had just seen him crossing the indoor bridge from the one building to the other. So we converged in that area and, low and behold, there he was. Whew! It looks like he got tired playing games and was headed back to his room! Of course he wasn't aware that anything was wrong. As punishment, we lost the right to take him off campus over the weekend, which we had just barely managed to secure after a fair amount of begging. Frankly, we think the punishment doesn't fit the crime very well, but we're always at the mercy of the doctors and so it's hard to put up much of a battle for fear of ending up on their bad side.
After dinner (which Josh ate a lot of), he and Paul kicked back in the room and watched some episodes of The Office, a show Josh used to love. Josh eventually got tired so the nurse gave him his meds a little earlier and Paul left him in the care of Haley, our favorite tech.
We did want to thank everyone for all the kind birthday texts, emails, calls, posts, cards, and presents that were sent to Mary for her birthday earlier this week. It really is amazing how thoughtful people can be. Mary really appreciated the showing of love. Thank you, all.
Mary was in the ER again early this morning. Besides the burning in the throat and ears, the coughing, and NO voice, she was having trouble breathing. She got the full workup this time: IV, EKG, lung x-ray, ambulizer, blood panel, the whole 9 yards. But the final diagnosis was the same as Monday morning: a virus. "Likely a small virus that won't go away because of stress." (What stress?) We wish it were strep. Z-pack and done. The doctor said it should be gone in 2 weeks. Two MORE weeks??!! Mary did take some time away from the hospital again today -- on two occasions -- to try to relax and get some rest.
Josh's first class was at 9:00 this morning. Josh's double vision began just yesterday and it seems to have progressed quickly, which we hope is good. It bothered him today. So in OT they worked on strengthening his right eye, and they taped over the lens on his glasses so he can't see through that eye. The therapist called it "optic neuropathy," which if accurate is hopeful because that means that the nerve has a chance of regrowth.
Josh's next class was PT. If the vision in his right eye returns, he will regain depth perception so Josh won't have so many restrictions on walking - specifically, no more wheelchair. So, in hopes of that happening fairly soon, they focused on balance today in PT.
After lunch, Josh had ST but we don't know what happened in there because he did it alone with the therapist. He also spent a few minutes with Dr. Schraa, his psychologist.
Josh did give us a scare today. We were with him in the special T-Rec center, where we play Foosball, air hockey, pool, and games on the Kinect. We turned our eyes for a minute and, poof, he was gone. He just took off on his own and we didn't see where he went. Well, we immediately began a hurried search of the entire campus, running all around and even looking up and down streets. We alerted the staff and they helped. Finally one of the other families reported that they had just seen him crossing the indoor bridge from the one building to the other. So we converged in that area and, low and behold, there he was. Whew! It looks like he got tired playing games and was headed back to his room! Of course he wasn't aware that anything was wrong. As punishment, we lost the right to take him off campus over the weekend, which we had just barely managed to secure after a fair amount of begging. Frankly, we think the punishment doesn't fit the crime very well, but we're always at the mercy of the doctors and so it's hard to put up much of a battle for fear of ending up on their bad side.
After dinner (which Josh ate a lot of), he and Paul kicked back in the room and watched some episodes of The Office, a show Josh used to love. Josh eventually got tired so the nurse gave him his meds a little earlier and Paul left him in the care of Haley, our favorite tech.
We did want to thank everyone for all the kind birthday texts, emails, calls, posts, cards, and presents that were sent to Mary for her birthday earlier this week. It really is amazing how thoughtful people can be. Mary really appreciated the showing of love. Thank you, all.
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